Today is day 3 and I feel a lot better. My levels went down to 866. The doctors have a meeting this morning to discuss what they want to do. A possible muscle biopsy is in discussion (might as well kill 2 birds with one stone). I'm exhausted because every hour they were in here taking vitals, doing a breathing treatment, changing my fluids, turning the alarm off on my machine, or doing bloodwork. I have another blood drawing at 6 tonight. My dr said if it is going down more I can go home early tomorrow morning. God sent me the dr who took care of me when I had my muscle disease when I was 3. He even remembers me so hopefully he will be the advocate for me and try and figure out why I keep relapsing. Thanks for the prayers and support. Until tomorrow....
Wednesday, November 10, 2010
Day 2-3: it wouldn't be a journey without pot holes
So day one went really well except for later that night. I had an asthma attack. Day 2 didn't go because I was sick and my back was starting to hurt. I had to take my albuterol treatment that night because I had yet another asthma attack. My back pain got worse and my chest pain started. I got really scared and tested for the muscle disease that I have and it wasn't looking good. I stocked up on pedialyte (as recommended by my dr) and drank it all night. The next morning I was still feeling pretty rough so I decided to call my pulmonologist and my primary care physician. My pulmonologist wasn't in clinic but said he was gonna come in and see me. I think he learned from last time to just admit me to watch me. My CPK levels were elevated at 955 (they are supposed to be below 250). Around midnight I had bad leg and back pains to where I had to get some pain meds.
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we believe for an answer! How cool is it that the same doc as when you were 3! So like God.
ReplyDeleteLove ya!!